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Archive for November, 2018

I mean… sometimes I just melt! Here’s Max and Cory, two beautiful souls brought together in tragic circumstances, now bringing Christmas cheer to children in hospital over the festive season, every year.

Such beautiful families who have been through so much, but keep smiling and making the world a better place. A very merry Christmas story indeed – out now in Pick Me Up.

This story makes me cry! An incredible insight into what a family went through while twins Alex and Lucas fought for survival after a premature birth. So lovely to hear a dad’s point of view too, because dad’s don’t get much of a look in when it comes to real life stories. Jonathon kindly shared his diary with us and it is at times funny, at times heartbreaking, but hopeful and brave too.

Jonathon is raising awareness of the incredible charity Ronald McDonald House – free accommodation set up beside hospitals for people in Jonathon’s predicament – too far from home, in need of a bed. You can find out more about them here. 

One of those charities you might not know exists until you need them…

Jonathon’s story was in the Sunday Mirror yesterday. You can read it online here.

Always brings a proud smile to my face to write about the Down’s syndrome community. This piece for the Sun was one we organised back in March so it’s great to finally see it in print, just in time for World Down’s syndrome Awareness Month. Four mums tell readers why their children deserve to be celebrated for bringing sunshine into their families.

In the age of NIPT (non-invasive prenatal testing) the Down’s syndrome community fear that terminations will increase and the community will begin to shrink. What a sad world that would be. Let’s hope that alongside the new testing technique, we’ll see an improvement in the ‘bedside manner’ of medical professionals, who need to offer a realistic portrayal of what life with the condition actually looks like, in today’s world, not the 1970s.

For advice and support, Future of Downs is an excellent website. And you can read the Sun story in full here.