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All posts in World Down’s Syndrome Day

In Bella this week, the beautiful story of Jeni and her daughters, Effie and Blythe, who both have a rare form of Down’s syndrome. It’s incredibly rare for more than one child in a family to have Down’s syndrome, and Jeni explains how lucky she feels with such wondrous love for her children, it is a truly gorgeous read.

Out now in Bella!

This beauty is Kate, a 19 year old model and now, crowned winner of Teen Ultimate Beauty of the World. Kate has Down’s syndrome and is on a mission to advocate equality. She is beautiful inside and out and an absolute joy to work with. Humble, kind, funny and so charismatic, I can see why her mum could hear the judges laughter through the walls during Kate’s pageant interview!

To find out more about Down’s syndrome, this website is the absolute best: The Future Of Downs

If you’d like to enter the fantastic, inclusive and wonderful Ultimate Beauty pageant, check out their website here.

Kate’s story was in the Sunday People and you can read it in full here.

For this glorious piece, mums Pippa, Emma and Vicky wrote themselves an open letter, going back in time to the day they found out their beautiful children had Down’s syndrome. The letters are poignant, powerful, funny, sweet and so lovely. Just like their children! I am so proud to work for the Down’s syndrome community, doing what we can to represent the reality of Down’s syndrome in the media so that families of the future understand that it’s not to be feared. Down’s syndrome has made these incredible children who they are.

Out now in Best. I worked on this piece in partnership with The Specials, which is a wonderful project. Check out their videos here.

You probably saw the video – it’s now had four million views! It’s a wonderfully uplifting idea, created by 50 mums in the Down’s syndrome community (and edited by one dad – Jamie!) which saw the world’s heart melt for their beautiful, gifted kids. In our never-ending ambition to educate the world on what Down’s syndrome really means, this video summed it all up to a beat. It means happy families. It means clever kids. It means sunshine and smiles and laughter and tears (happy tears!)

Here, three of the mums featured in the video share with Bella magazine what it was like to see their kids go ‘viral’ … and what a profound effect on people’s understanding of Down’s syndrome they hope the video will have.

Happy World Down’s syndrome Day! Time for my annual love fest – click below to see a collection of the incredible families I’ve written about in the last year. I feel so incredibly fortunate to be able to use my pen (alright, keyboard) to celebrate so many inspiring young people. These are the game-changers, the rule-breakers, the cliche-defiers – while there’s never been more urgency to highlight what Down’s syndrome actually is (and not what medical professionals would STILL have us fear it is) these little legends are going about their legendaryness with aplomb. Just by being who they are, the ripple effect across society says We. Are. Awesome. So while NIPT (noninvasive prenatal testing) looms into view, the Down’s syndrome community are here to say #wouldntchangeathing.

For more information about Down’s syndrome, visit www.futureofdowns.com an online community offering friendly support for parents and an up to date, balanced view of life with the condition.

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So, so proud of Kathleen! Such an honour to get to write about amazing women every day. Do I have the best job in the world, or what?! Kathleen and her mum Denise invited me into their world and let me champion their lives. Now more than ever, we need to show society that Down’s syndrome is nothing to be feared. Down’s syndrome is to be celebrated. Quick, before NIPT (non-invasive prenatal testing) causes a dramatic decrease in the number of people born with Down’s syndrome. As Kathleen will tell you, her life rocks.

 

Please buy Best Magazine this week to read all about Kathleen. She’s going places!

Extra big story this week – three pages in Best Magazine. Absolutely love all these champs, writing open letters to their future selves. I love this style of writing, it’s so powerful. We have Claire, advising herself on life after her three eldest sons flew the nest… Tracey, discovering what truly matters in life after fighting cancer (and celebrating the news of a new baby on the way – whoop!) and Lou, a divorcee looking forward to new beginnings in 2018.

Thank you all for working with me and here’s to a wonderful new year x

Here’s a story sure to make you smile! The beautiful family Judy built – her ‘custom made’ family as she describes them! Unable to have children of their own biologically, Judy and Jim set out to adopt. Tom was their first child and they thought he was more than they needed… until they heard about Katie. Both children have Down’s syndrome and both children are excelling and wonderful and keep Jim and Judy on their toes even after all these years. Sounds like family life then…
For information and support about Down’s syndrome, visit www.futureofdowns.com

 

 

Super proud of these two teen mums. Ashleigh and Taylor may have given birth in their teens, but their wisdom defied their age. When their children, the gorgeous Riley and Casey respectively, were diagnosed with Down’s syndrome, these two teenagers rose up and fought for their kid’s rights. They found inner strength, they battled doctors, they ignored prognoses and championed the little babies in their care.

 

I love these women because they show that while society frowns at teen mums, these teen mums were exactly who their children needed on their team. They are beautiful parents. Age does not matter. Love matters!

 

Out in this week’s Bella. If you’d like to tell your parenting story get in touch today. For support in all things Down’s syndrome, visit the fantastic resource site Future of Down’s.

 

 

And found! Here’s the story of beautiful Bethany, a young lady looking for love on Channel 4’s Undateables. While her TV dates didn’t work out, a chap called Tom was watching and took a shine to our Beth. Through mutual contacts he got in touch and the rest, as they say, is history! Tom and Beth have been together over a year now and are madly in love. He tells her she’s beautiful every day, which is just what Bethany needed to hear.

Huge thanks to Bethany’s mum Bekki for sharing their lovely story with me.

To find out more about Down’s syndrome and get support from other parents in the community, visit the Future of Down’s website.

Out in Take a Break this week!