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All posts tagged Bella Magazine

Hello cutie! Here’s little Neave to touch your heart this Christmas! She gave her family a surprise last year but she’s doing great now and this year promises to be a bit less dramatic for the Baldwin family.

A lovely story celebrating Down’s syndrome and the joy it brings. Out now in Bella.

If only there were just tantrums… poor Grace was dismissed by GPs as going through a ‘tantrum phase’. Sadly, what her change of behaviour actually revealed was the utterly devastating Batten’s disease. Mum Izabela shares her story in Bella magazine this week. It’s heartbreaking, but if her drug trial starts soon they hope to ward off and delay the onset of the debilitating symptoms.

For more about Batten’s visit the BDFA 

Another great resource is the website owned and run by the Rich family – The Nicole and Jessica Rich Foundation

I have written about the Rich family before and they are incredible. For support and information if you have just entered the Batten’s world, Gail is a fountain of knowledge.

Izabela’s story is out in Bella now.

Awwwww I love this family! Beautiful Maria and her beautiful children. Maria suffers from endometriosis and could not conceive again after the birth of her first child, Eleanor. She longed for a big, loud, happy family… Years went by and she booked in for a hysterectomy, ready to admit that it was not to be.

But then… along came Joseph. Joe has Down’s syndrome and in a stroke of fluke, luck and joy, so does his little sister – another surprise baby for the parents who thought they could not conceive!
Happy Families – just look at those smiles. Out now in Bella.

With Father’s Day ahead this weekend, I’ve been writing about amazing dads. Men who have been through the most heartbreaking of circumstances, but come out stronger for those around them. Men who are not afraid to talk about mental health and understand that true strength is in talking about our fragility. Men like Mark, who went out for a walk with his wife and toddler and came home a widow and a single dad. His story is so incredibly sad, but Mark found his way through it and taught himself how to be happy again. For his wife, Katherine. For his daughter, Margot.

Read Mark’s incredible attitude to the hand he’s been dealt out now in Bella. Mark was supported by WAY – widowed and young. If you have been widowed young, visit www.widowedandyoung.org.uk for support.  Mark writes an amazing blog here. 

Donna shares her story of how she watched Parkinson’s disease overwhelm her grandmother and her mother. Now battling it herself, Donna is such a brave and courageous woman, determined to give her own daughter the best life she can. It’s too soon to know if Beau has inherited Parkinson’s too but Donna lives in fear that she has.

With donations, research into Parkinson’s will find a cure before Beau grows up. Please visit Parkinson’s UK to donate.

Donna’s story is out now in Bella.

There wasn’t a dry eye in the house while I was working on this story – Jon’s love for his wife Rach shone through his words and it was an honour to write for him.

Over on my ‘charity’ page you can see the link for Jon’s fundraising campaign – he’s raising money for Breast Cancer Care to thank the charity for the support they gave his family during Rach’s cancer battle.

His story is out now in Bella.

Happy World Down’s syndrome Day 2019! It’s become my tradition to collate all the stories about all the legends of the Down’s syndrome community I’ve written about in the past year, to mark this wonderful, worldwide celebration. I have written about amazing children like Max, who I wrote about over Christmas for Best and Chat, who is just about the most gorgeous little elf in the world. I wrote a lovely feature for Best in the style of an open letter from mums Emma, Pippy and Vicky to themselves, offering advice on the day their children Corin, Leo and Audrey came into the world. Remember the Carpool Karaoke video that went mega-viral? We placed a story about a few of the mums involved, in Bella. And then there were a few stories about older people who had Down’s syndrome and are blazing trails – beauty queen Kate shared her story in the Sunday People and huge, happy congrats to Heidi, who shared her story in Best just recently, detailing the day her fiance proposed. I look forward to writing about your wedding, Heidi!

For more information about Down’s syndrome, visit www.futureofdowns.com an online community offering friendly support for parents and an up to date, balanced view of life with the condition.

Click ‘read more’ here to see all these fantastic stories in print! Read more

Divorce statistics hit an all time high at this time of year, as couples emerge from difficult festive challenges and start the new year determined to build happier lives – Judith shared her story with Bella to inspire people going through just that. Judith’s own new year divorce set her on a course for a happier life and it shows – she radiates happiness and is loving discovering who she is now she’s flying solo.

Out now in Bella.

I mean – seriously. Could Willow be any cuter? My latest Christmas themed story is about a beautiful little lady called Willow, who came along and completed her family. Hers is the sort of story Christmas is made for, because Christmas is a time for love and gratitude for those we keep close.

For more information about Down’s syndrome, visit www.futureofdowns.com, an online community offering friendly support for parents and an up to date, balanced view of life with the condition.

Catch Willow in Bella – out now!

I adore Tyler – he’s been through an extremely difficult and dark chapter but he’s determined to use his experiences to help other children. And he’s still only 11 years old.  Tyler has Asperger’s syndrome but for a long time, he couldn’t communicate how he was feeling or what he was going through. His dedicated, wonderful mum Tracy perservered and supported him, even sleeping on the floor beside his bed.

In time, Tyler was given the extra support he needed and he’s now flourishing – he wrote a book, Invisible Me, to help other kids, but he’s so wise, he can help adults while he’s at it. You can buy the book through the Marie Curie website here. 

Out in Bella now.