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All posts tagged having babies

Hello cutie! Here’s little Neave to touch your heart this Christmas! She gave her family a surprise last year but she’s doing great now and this year promises to be a bit less dramatic for the Baldwin family.

A lovely story celebrating Down’s syndrome and the joy it brings. Out now in Bella.

Love, love, LOVE this story! Absolutely love writing about women who have been on a journey to find peace with themselves. Women who have self-confidence, self-acceptance and happiness, much deserved. These are the kind of stories I want to read when I open a magazine and it is my great honour to help make them happen! Read all about Rachel, Nadine and Zoe in the new issue of Woman’s Own, out now.

If only there were just tantrums… poor Grace was dismissed by GPs as going through a ‘tantrum phase’. Sadly, what her change of behaviour actually revealed was the utterly devastating Batten’s disease. Mum Izabela shares her story in Bella magazine this week. It’s heartbreaking, but if her drug trial starts soon they hope to ward off and delay the onset of the debilitating symptoms.

For more about Batten’s visit the BDFA 

Another great resource is the website owned and run by the Rich family – The Nicole and Jessica Rich Foundation

I have written about the Rich family before and they are incredible. For support and information if you have just entered the Batten’s world, Gail is a fountain of knowledge.

Izabela’s story is out in Bella now.

This is a story of love, loss, hope and the happiest of endings in the wake of the saddest of times. Angeleen is an absolute delight. She knew that she and Chris would make perfect parents. After a brain tumour cruelly took his life too soon, she decided to have IVF with his sperm, creating two beautiful children.

The story was in the Mirror yesterday – read it online here. 

This isn’t an easy read, but it’s poignant and beautiful and Jon’s attitude towards the double tragedy he and wife Vikki faced is utterly gorgeous. Because he’s glad he had the little time he had with his twin sons. He’s grateful to the medical team who tried to save their lives, the friends he made while living in the worst possible circumstances, the kindness of those who helped his family during their time of need. It’s these things he focuses on – what a wonderful man he is.

Daughter Cecily Hope was born just a few weeks ago, making this coming Father’s Day both a happy and a sad one for Jon. Read his story in Best now…

Jon was supported by Ronald McDonald House Charities, a home away from home for families in his position. Find out more at www.rmhc.org.uk

 

Happy World Down’s syndrome Day 2019! It’s become my tradition to collate all the stories about all the legends of the Down’s syndrome community I’ve written about in the past year, to mark this wonderful, worldwide celebration. I have written about amazing children like Max, who I wrote about over Christmas for Best and Chat, who is just about the most gorgeous little elf in the world. I wrote a lovely feature for Best in the style of an open letter from mums Emma, Pippy and Vicky to themselves, offering advice on the day their children Corin, Leo and Audrey came into the world. Remember the Carpool Karaoke video that went mega-viral? We placed a story about a few of the mums involved, in Bella. And then there were a few stories about older people who had Down’s syndrome and are blazing trails – beauty queen Kate shared her story in the Sunday People and huge, happy congrats to Heidi, who shared her story in Best just recently, detailing the day her fiance proposed. I look forward to writing about your wedding, Heidi!

For more information about Down’s syndrome, visit www.futureofdowns.com an online community offering friendly support for parents and an up to date, balanced view of life with the condition.

Click ‘read more’ here to see all these fantastic stories in print! Read more

I had over 200 people get in touch wanting to be a part of this report – which goes to show what a mess we’re in! Too many kids are being passed around the system yet overlooked, while their parents are being made to feel like they are the problem.

This report, which I worked on for Scope, the disability charity, is in Take a Break this week. It is a very interesting, and sad, read. If you are affected by the details in this report please do visit the Scope website – they are a wonderful charity.

This story makes me cry! An incredible insight into what a family went through while twins Alex and Lucas fought for survival after a premature birth. So lovely to hear a dad’s point of view too, because dad’s don’t get much of a look in when it comes to real life stories. Jonathon kindly shared his diary with us and it is at times funny, at times heartbreaking, but hopeful and brave too.

Jonathon is raising awareness of the incredible charity Ronald McDonald House – free accommodation set up beside hospitals for people in Jonathon’s predicament – too far from home, in need of a bed. You can find out more about them here. 

One of those charities you might not know exists until you need them…

Jonathon’s story was in the Sunday Mirror yesterday. You can read it online here.

 

Well this story has me cutting onions, that I can tell you. The beautiful, poignant story of little Kaiden, whose heart is sadly broken. There is so much love in the Welch family and Kaiden is wise beyond his years. His mum, Kyra, shares his story in Woman’s Own this week and it’s a heartbreaking read. He’s an absolute champ and we love him!

It’s postnatal depression awareness week and to mark the campaign, we shared Amber’s story in Reveal. Amber’s an extraordinary woman who is determined to tell her story in order to help other mums realise that motherhood is really hard – and that’s okay.
With searing honesty, Amber explains how she just did not like being a mother. It’s a role she has come to love and her journey to where she is now needs to be heard. Too many women feel the burden of ‘perfection’ coming at them from all corners. (Instagram has so much to answer for!)
If you need support through the early steps of parenthood, visit PANDAS for support,